When Michael and Beth Malia’s daughter, Kaylee, was diagnosed with Type 1 diabetes at the age of four, they quickly learned that effective communication would be key to managing her care as parents - and partners. Their story emphasizes the importance of teamwork and shared decision-making, especially in navigating the complexities of diabetes management.
The early days: facing overwhelm together
At the start, Beth and Michael were overwhelmed with emotions and an influx of medical information. Beth admits, "I did more crying than really even paying attention" during their initial doctor visits. Meanwhile, Michael took on the role of absorbing all the medical details, while Beth leaned on him to handle the information overload.
Recognizing each other’s strengths and weaknesses in those early days set the foundation for how they would communicate moving forward. Their ability to divide responsibilities effectively allowed them to support one another through the emotional and practical challenges of the diagnosis.
Learning to communicate openly
As the Malias navigated Kaylee’s care, they quickly realized how vital it was to have open, honest conversations. They didn’t always agree on every aspect of Kaylee’s management—from insulin dosing to dietary decisions. But their willingness to talk about their disagreements openly became a critical part of their communication strategy. This honesty, they say, has been a crucial part of making sure they’re both on the same page as parents.
Teamwork, even through disagreement
Though they occasionally disagree, Michael and Beth learned to work together as a team for Kaylee’s benefit. They adopted a “tag-team” approach to diabetes management, balancing their individual concerns with the need for consistent care. They didn’t just tackle this challenge alone—by involving their extended family in Kaylee’s care, they built a strong support system that ensured no one was left to carry the weight alone.
This collective effort has strengthened their family bond and provided Kaylee with the care and stability she needs.
The role of TK.Type 1
The creation of their nonprofit organization, TK.Type 1, became a pivotal part of their parenting journey. Founded shortly after Kaylee's diagnosis, TK.Type 1 serves as a support system not only for their family but also for others navigating similar challenges. The entire Malia family—Michael’s brothers, their wives, and even grandparents—became actively involved in this initiative.
Through TK.Type 1, they provide scholarships for families seeking coaching support in managing Type 1 diabetes. This collective effort not only strengthened their family bonds but also created a broader community of support that emphasizes the importance of collaboration in managing diabetes.
Strengthening their relationship through shared commitment
At first, Kaylee’s diagnosis tested Michael and Beth’s relationship in ways they hadn’t expected. But through open communication and mutual support, they found themselves growing stronger together. They learned to blend their individual parenting styles while remaining united in their decision-making for Kaylee’s care. This strengthened not only their bond as parents but also their partnership as a couple.
Lessons for other families
The Malias’ journey offers key takeaways for other families navigating similar challenges:
- Respect emotional responses: Acknowledge and understand each other’s emotional reactions to difficult situations.
- Play to each other’s strengths: Divide responsibilities based on individual strengths and abilities.
- Embrace honest communication: Be open about disagreements and work through them together.
- Stay unified in decision-making: Present a united front, especially when it comes to medical care decisions.
- Build a support system: Involve extended family and friends to create a network of support.
By prioritizing communication, collaboration, and shared responsibility, parents can not only navigate the complexities of Type 1 diabetes but also strengthen their relationships and family bonds in the process.
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